PD News

Moving Day 2015!

MovingDay_FullColor4Moving Day 2015 has come, but it has not gone. The dreary, cold weather kept many people at home staying warm and dry, but more than 500 hardy souls joined us for a wonderful walk. Our goal this year is $80,000, and we still have that in our sights. We did not get the typical boost from walk-up registrations and donations this year, so we are a little behind. Still, we have another 28 days to collect donations for Moving Day, so if you were planning to come by but didn’t, there is still time to make that donation. Just think, if everyone got a mere $10 from 10 more people, we would get to where we need to be. Please give it a try. Call 716 449-3795 or e-mail cjamele@npfwny.org

Bob Russell (in his hat) with daughter Laurice

Bob Russell (in his hat) with daughter Laurice

“Moving” Moving Day Story

Bob Russell has battled PD for more than a decade. His Moving Day team, Team Russell, has been involved in the event since its inception. If you love a touching story, or you need a bit more motivation to get your team together for Moving Day, please read “A Man of Many Hats.” I dare you not to want to join us! Click here for the story.


Fredonia FlierFredonia/Southern Tier Support Group – Our newest Support Group will provide much needed assistance to our friends in Southern Erie County and the Southern Tier. The group will meet on the 2nd Tuesday of every month between 6:30 – 7:30 PM, beginning on October 13th. Patients, caregivers and family members are welcome to join us at the St. Paul Lutheran Church, 334 Temple Street in Fredonia. Reservations not required. Just come by. For more information, call 716 449-3795, e-mail cjamele@npfwny.org, or click here!

What’s Happening

Tremble Clefs FlierTremble Clefs – Western New York now has its very own singing group for our Parkinson’s community. There are Tremble Clef choruses across the country, and now you will have a chance to enjoy the inspiration of singing your heart our while exercising your voice and lungs.  The free rehearsals will be held on Tuesday evenings, beginning on September 29th, from 6:30 – 7:15 at the Faith United Church of Christ on Maple Road. For more information, call Mary Lou Wiltberger at 716 691-8048, contact Chris Jamele at 716 449-3795 or cjamele@npfwny.org, or click here!

PDdance logoPDdance classes are underway. Teaching artist Cynthia Pegado is holding 2 sessions. The classes are free, and no experience on the dance floor is required. These classes are for everyone, literally! If you need help with balance, gait, flexibility, coordination, isolation or depression, this program is what you need. You will love it. Classes are Tuesdays from 11 AM ’til noon in Williamsville and Thursdays from 2 – 3 PM in Kenmore. For more information, click here.

Deep Brain Stimulation Therapy Seminar – Join us for a free group seminar to help you learn about DBS. This is not a one-on-one consultation, but a chance for you to find out what DBS is, how it works, who it helps, and if it might be right for you. Pat Weigel, RN, BSN, RNFA, is a DBS coordinator and she will be facilitating the seminar. Seats are limited. Call 716 218-1000 x6115 to make reservations. Dates are August 24th or November 16th. Sessions begin at 4 PM.

Comprehensive Movement Disorders Center/ 5959 Big Tree Road, Suite 103, Orchard Park, NY.

Valentine's HeartsValentine’s Dinner Dance – This annual event is  a well-loved evening of delicious food, great music and wonderful memories. Once again, we welcome you and yours to join us at Illio DiPaolo’s for a heartwarming night in the midst of a Western New York winter. Tickets are $12 each, which provides dinner, soft drinks and entertainment. Family members are welcome, but we only have room for 100. We can’t guarantee seats for walk-ups. RSVP at 716 449-3795 or jamele@npfwny.org.

Worth A Look!

Motivational speaker and PD patient John Baumann came to Buffalo this past May! If you didn’t get to see his moving and inspirational talk, download a free copy of his presentation here.

Did you know we have a Facebook page? Check us out and “like” our page to get updates on our chapter, view pictures from recent events, and share comments.

Lending Library – Interested in learning more about Parkinson’s disease? Our office has a variety of books and media available free for you to borrow! To borrow materials, please contact our office at (716) 449-3795. Check out the complete list of titles here.

Niagara Falls in blue 2 Niagara Falls bathed in blue for PD Awareness Month Blue Peace Bridge 1 Peace Bridge lit in Blue for PD Awareness Month Read past educational articles and stories.